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I have 36 of the 58 on the list, I am excluding things like spasms and other which only happen sparingly, now. I used to have ticks often (not ticks, but you know, of the body)
Makes me wonder.. This state is very proactive about Lyme, I got mine at Quincy Bog in NH, wearing pants, knee high socks, sweater, protected, got me just above the knee highs, got the classic rash, never saw the tick on me, but then when I was at my aunt and uncles house for the summer I couldn’t move my body, everything was horrific pain, I had the classic rash and they called all the doctors into the clinic to admire it, tested me for meningitis, gave me a spinal tap, all that, but when I got it was when i was a teen (13 or 14), so I wonder what is wrong, genetics (head meds never helped these past couple years, i never took any then but tried everything for about 2-3 years here)
My nickname is ST (Short Term (memory)). I remember nothing since then, that’s when it started and degraded.
I was lucky to get the rash and know instantly what had happened, thanks to my grandmother, but I have never been the same since. And I feel like whatever it is, a mental disease or neurological problems, it gets worse as I age. I am not the same person.
I know many people who have had it for years and not known. Doctors would say nothing, not see the signs, i had a client who quit the red sox because his kid was always sick, in and out of hospitals, her mother wrote a book about it.
Here’s a list a friend of mine sent, when I was proactive and researching, when I had a few stints of memory;
No problem. I’ve suffered for a long time with all this shit and its not fun.
Okay, so.. This is a check list of current symptoms. You’re supposed to rate each symptom’s current severity as none/mild/moderate/severe… Then, with that same symptom, you rate the current frequency of it as never/occasional/often/constant.. Its a pain in the ass. But, I’ll just list all the symptoms.
1. Persistent swollen glands
2. Sore throat/ fevers
3. Sore soles, especially in the AM
4. Joint pains (fingers, toes - ankles, wrists - knees, elbows - hips, shoulders)
5. Joint swelling (fingers, toes - ankles, wrists - knees, elbows - hips, shoulders)
6. Unexplained back pain
7. Stiffness of the joints or back
8. Muscle pains or cramps
9. Obvious muscle weakness
10. Twitching of the face or other muscles
11. Confusion or difficulty thinking
12. Difficulty with concentration, reading, problem absorbing information
13. Word search, name block
14. Forgetfulness, poor short-term memory, poor attention
15. Disorientation, getting lost, going to wrong places
16. Speech-errors, wrong word, misspeaking
17. Mood swings, irritability, depression
18. Anxiety (hallucinations, delusions, paranoia, bipolar)
19. Tremor, seizures
21. Light sensitivity, sound sensitivity
22. Vision: double, blurry, floaters
23. Ear pain
24. Hearing: buzzing, ringing, decreased hearing
25. Increased motion sickness, vertigo, spinning
26. Off balance, “tippy” feeling
27. Lightheadedness, wooziness, unavoidable need to sit or lie down
28. Tingling, numbness, burning or stabbing sensations, shooting pains, skin hypersensitivity
29. Facial paralysis- Bell’s Paulsy
30. Dental pain
31. Neck creaks and cracks, stiffness, neck pain
32. Fatigue, tired, poor stamina
33. Insomnia, fractionated sleep, early awakening
34. Excessive night time sleep
35. Napping during the day
36. Unexplained weight gain
37. Unexplained weight loss
38. Unexplained hair loss
39. Pain in genital area
40. Unexplained menstrual irregularity
41. Unexplained milk production
42. Breast pain
43. Irritable bladder or bladder dysfunction
44. Erectile dysfunction
45. Loss of libido
46. Queasy stomach or nausea
47. Heartburn, stomach pain
48. Constipation, diarrhea
49. Low abdominal pain, cramps
50. Heart murmur or valve prolapse
51. Heart palpitations or skips
52. “Heart block” on EKG, Chest wall pain or ribs sore
53. Head congestion
54. Breathlessness, “air hunger”, unexplained chronic cough
55. Night sweats
56. Exaggerated symptoms or worse hangover from alcohol
57. Symptom flares every 4 weeks
58. Degree of disability
And here’s an interesting documentary about it as well.
Sarah Cookiepuss Blackburn I’ve seen this documentary and it made me furious. the fact that doctors are refusing to admit that long term lyme disease is a real problem makes me sick. Its even worse that the doctors refuse to give them the only medication that seems to work. UGH.
Fryday Child My mother got Lyme disease about five years ago. Some doctors claim Lyme disease doesn’t even exist.. She is a 59 year old waitress and is on her feet for six straight hours 4-6 nights a week. I feel terrible that she has to be in pain like that while the doctors argue over who is right instead of finding better treatment or a cure.
Zzy Meloy A very dear friends of mine is currently suffering from this. He is a completely different person than the one I knew before. His health is persistently deteriorating. He has luckily found some physicians who believe him, but since hardly anyone is studying how to cute thus there isn’t much help for this.
May Machin I’m sorry about your friend Zzy Meloy, i have many as well, and may probably don’t even know why they are sicka nd in pain. like i said i have 36 our of the 58 on the list and I excluded quite a few as they are seldom, now, or maybe unnoticed by me anymore as it has been so long. Britteny Rose has seen some ticks, well often, and i always do things every day but i blame it on anxiety.
Cannibalized Yeah I had 2 weeks of doxy but they told me up here in MA that it will never go away and can come back at any time. I do have heart conditions now (and meds for them that I don’t take) and obviously no memory and am not “right” in the head so it makes me wonder. like I said up there I have 36 of the 58 sympoms on that list, with me excluding ones that are just seldom.
Cannibalized OH YOU SHUT YOUR MOUTH, SIR!about an hour ago · Like
Cannibalized I write lyme on my chart every time, I used to go to the hospital about twice a month, intentionally lived in quincy near hospital hill. of course all i heard from freecare (or poor care) from the asian doctors “DRINK MOAR WATA” and they’d shove me out the door. This was for years. All sorts of ailments. Institutionalized myself. Stoke, seizures, hives, no memory, facial and neck ticks and spasms. When I got it, they told the truth, now they (different doctors) shove me out of the office as quick as possible, even yell at me if the nurse doesn’t do all the paperwork, “WASTE MY TIME!” they think i’m a hypochondriac i think, but I had, and have on my personal page “what’s wrong now?” as a folder, just random things, I never really mentioned the pain, aside from to a roomate of mine, a good day is a headache, others are migranes, left side brain and left side occular, i joke that I need an eyepatch but it’s like a trend in photography lol. Also a smell of anything, food, whatever, would make me sick. The list has so many similarity that I couldn’t avoid the thought that it either caused or escalated my physical and mental illnesses. My heart, my mind, my memory, , my body. But they don’t listen anymore. It sucks.